What a difference a day makes. Aerin is so much better. Dr. Seguira gave new orders that really helped her. He figured out that she should be getting only half her feed in the bottle. Otherwise, she gets the entire feed over 30 minutes, instead of an hour. That is too fast - it's no wonder she was refluxing more than usual. He also ordered the milk thickener for her tube feeds (she was already getting it in her bottles). She got all the way down to 25% on her oxygen, which is the lowest she's ever gone on the cannula. That is so incredible. Just yesterday she was desatting at 60-70%. She also gained weight again - she's up to 3 pounds, 8.7 ounces.
We went to the parents' meeting this evening. We were the "veterans" there - we had the most premature baby, and she's been in the NICU the longest. The nurse, Tammy, even described us as being "7.5 weeks in." It really helps to talk to people who are going throught the same thing we are. It also helps to have so many people supporting us, online and off. Thanks, everyone.
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